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Encephalocraniocutaneous lipomatosis

ORPHA:2396DiseaseNot applicableAntenatal, Neonatal

Ассоциированные гены (2)

FGFR1
fibroblast growth factor receptor 1
Disease-causing somatic mutation(s) in
OMIM: 136350
KRAS
KRAS proto-oncogene, GTPase
Candidate gene tested in
OMIM: 190070

Фенотипы (55)

Очень частый (80–99%)10
HP:0000488Retinopathy
HP:0000991Xanthomatosis
HP:0001012Multiple lipomas
HP:0001249Intellectual disability
HP:0001250Seizure
HP:0001263Global developmental delay
HP:0001482Subcutaneous nodule
HP:0001596Alopecia
HP:0009125Lipodystrophy
HP:0012759Neurodevelopmental abnormality
Частый (30–79%)33
HP:0001276Hypertonia
HP:0001331Absent septum pellucidum
HP:0001704Tricuspid valve prolapse
HP:0002059Cerebral atrophy
HP:0002063Rigidity
HP:0002092Pulmonary arterial hypertension
HP:0002119Ventriculomegaly
HP:0002120Cerebral cortical atrophy
HP:0002167Abnormality of speech or vocalization
HP:0002300Mutism
HP:0002381Aphasia
HP:0002514Cerebral calcification
HP:0002797Osteolysis
HP:0003552Muscle stiffness
HP:0004493Craniofacial hyperostosis
HP:0005306Capillary hemangioma
HP:0007957Corneal opacity
HP:0010529Echolalia
HP:0010622Neoplasm of the skeletal system
HP:0012062Bone cyst
HP:0012157Subcortical cerebral atrophy
HP:0100761Visceral angiomatosis
HP:0000256Macrocephaly
HP:0000271Abnormality of the face
HP:0000492Abnormal eyelid morphology
HP:0000499Abnormal eyelash morphology
HP:0000612Iris coloboma
HP:0000614Abnormal nasolacrimal system morphology
HP:0000708Atypical behavior
HP:0000929Abnormal skull morphology
HP:0001052Nevus flammeus
HP:0001257Spasticity
HP:0001274Agenesis of corpus callosum
Периодический (5–29%)12
HP:0000943Dysostosis multiplex
HP:0001269Hemiparesis
HP:0001650Aortic valve stenosis
HP:0001679Abnormal aortic morphology
HP:0001680Coarctation of aorta
HP:0002301Hemiplegia
HP:0002445Tetraplegia
HP:0002652Skeletal dysplasia
HP:0002763Abnormal cartilage morphology
HP:0003470Paralysis
HP:0011611Interrupted aortic arch
HP:0040188Osteochondrosis

Эпидемиология (2)

Cases/families
Worldwide
Point prevalence
<1 / 1 000 000
Worldwide

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы