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Arthrogryposis-renal dysfunction-cholestasis syndrome

ORPHA:2697Malformation syndromeAutosomal recessiveNeonatal

Ассоциированные гены (2)

VPS33B
VPS33B late endosome and lysosome associated
Disease-causing germline mutation(s) in
OMIM: 608552
VIPAS39
VPS33B interacting protein, apical-basolateral polarity regulator, spe-39 homolog
Disease-causing germline mutation(s) in
OMIM: 613401

Фенотипы (32)

Очень частый (80–99%)2
HP:0001531Failure to thrive in infancy
HP:0002804Arthrogryposis multiplex congenita
Частый (30–79%)15
HP:0000124Renal tubular dysfunction
HP:0000962Hyperkeratosis
HP:0001249Intellectual disability
HP:0001994Renal Fanconi syndrome
HP:0002028Chronic diarrhea
HP:0002240Hepatomegaly
HP:0002719Recurrent infections
HP:0002908Conjugated hyperbilirubinemia
HP:0006566Neonatal cholestatic liver disease
HP:0007370Aplasia/Hypoplasia of the corpus callosum
HP:0008064Ichthyosis
HP:0008780Congenital bilateral hip dislocation
HP:0011873Abnormal platelet count
HP:0012483Abnormal alpha granules
HP:0030402Abnormal platelet aggregation
Периодический (5–29%)14
HP:0000121Nephrocalcinosis
HP:0000252Microcephaly
HP:0000365Hearing impairment
HP:0000369Low-set ears
HP:0000821Hypothyroidism
HP:0000938Osteopenia
HP:0000973Cutis laxa
HP:0001252Hypotonia
HP:0001558Decreased fetal movement
HP:0001562Oligohydramnios
HP:0002756Pathologic fracture
HP:0003202Skeletal muscle atrophy
HP:0005248Intrahepatic biliary atresia
HP:0009806Nephrogenic diabetes insipidus
Исключён (0%)1
HP:0030948Elevated gamma-glutamyltransferase level

Эпидемиология (2)

Cases/families
Worldwide
Point prevalence
<1 / 1 000 000
Worldwide

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы