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Hoyeraal-Hreidarsson syndrome

ORPHA:3322DiseaseAutosomal dominant, Autosomal recessive, X-linked recessiveInfancy, Neonatal

Ассоциированные гены (6)

DKC1
dyskerin pseudouridine synthase 1
Disease-causing germline mutation(s) in
OMIM: 300126
TERT
telomerase reverse transcriptase
Disease-causing germline mutation(s) in
OMIM: 187270
TINF2
TERF1 interacting nuclear factor 2
Disease-causing germline mutation(s) in
OMIM: 604319
RTEL1
regulator of telomere elongation helicase 1
Disease-causing germline mutation(s) in
OMIM: 608833
ACD
ACD shelterin complex subunit and telomerase recruitment factor
Disease-causing germline mutation(s) in
OMIM: 609377
PARN
poly(A)-specific ribonuclease
Disease-causing germline mutation(s) in
OMIM: 604212

Фенотипы (28)

Очень частый (80–99%)10
HP:0000252Microcephaly
HP:0001249Intellectual disability
HP:0001263Global developmental delay
HP:0001321Cerebellar hypoplasia
HP:0001508Failure to thrive
HP:0001511Intrauterine growth retardation
HP:0001873Thrombocytopenia
HP:0002721Immunodeficiency
HP:0004322Short stature
HP:0004334Dermal atrophy
Частый (30–79%)12
HP:0001276Hypertonia
HP:0001903Anemia
HP:0001928Abnormality of coagulation
HP:0002119Ventriculomegaly
HP:0002120Cerebral cortical atrophy
HP:0002209Sparse scalp hair
HP:0002216Premature graying of hair
HP:0002745Oral leukoplakia
HP:0007392Excessive wrinkled skin
HP:0007440Generalized hyperpigmentation
HP:0008404Nail dystrophy
HP:0011358Generalized hypopigmentation of hair
Периодический (5–29%)6
HP:0001251Ataxia
HP:0001265Hyporeflexia
HP:0001881Abnormal leukocyte morphology
HP:0002514Cerebral calcification
HP:0002664Neoplasm
HP:0005528Bone marrow hypocellularity

Эпидемиология (2)

Point prevalence
<1 / 1 000 000
Worldwide
Cases/families
Worldwide

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы