← Назад

Fibrodysplasia ossificans progressiva

ORPHA:337DiseaseAutosomal dominant, Not applicableChildhood

Ассоциированные гены (1)

ACVR1
activin A receptor type 1
Disease-causing germline mutation(s) (gain of function) in
OMIM: 102576

Фенотипы (35)

Облигатный (100%)1
HP:0011986Ectopic ossification
Очень частый (80–99%)11
HP:0001376Limitation of joint mobility
HP:0001482Subcutaneous nodule
HP:0001844Abnormal hallux morphology
HP:0002949Fused cervical vertebrae
HP:0003306Spinal rigidity
HP:0003468Abnormal vertebral morphology
HP:0010054Abnormality of the first metatarsal bone
HP:0010109Short hallux
HP:0011987Ectopic ossification in muscle tissue
HP:0011989Ectopic ossification in ligament tissue
HP:0030431Osteochondroma
Частый (30–79%)11
HP:0000365Hearing impairment
HP:0001172Abnormal thumb morphology
HP:0001385Hip dysplasia
HP:0001596Alopecia
HP:0002093Respiratory insufficiency
HP:0002650Scoliosis
HP:0002659Increased susceptibility to fractures
HP:0003367Abnormal femoral neck morphology
HP:0010058Aplasia/Hypoplasia of the phalanges of the hallux
HP:0030084Clinodactyly
HP:0030838Hip pain
Периодический (5–29%)7
HP:0000787Nephrolithiasis
HP:0001004Lymphedema
HP:0001508Failure to thrive
HP:0001822Hallux valgus
HP:0002625Deep venous thrombosis
HP:0030038Enchondroma
HP:0100240Synostosis of joints
Очень редкий (1–4%)5
HP:0000501Glaucoma
HP:0001249Intellectual disability
HP:0001250Seizure
HP:0001903Anemia
HP:0002750Delayed skeletal maturation

Эпидемиология (7)

Point prevalence
<1 / 1 000 000
Worldwide
Point prevalence
<1 / 1 000 000
United Kingdom
Prevalence at birth
<1 / 1 000 000
Spain
Point prevalence
<1 / 1 000 000
Spain
Point prevalence
<1 / 1 000 000
Europe
Point prevalence
1-9 / 1 000 000
France
Point prevalence
<1 / 1 000 000
United States

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы