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Progressive external ophthalmoplegia-myopathy-emaciation syndrome

ORPHA:352447DiseaseAutosomal recessiveAll ages

Ассоциированные гены (1)

MGME1
mitochondrial genome maintenance exonuclease 1
Disease-causing germline mutation(s) (loss of function) in
OMIM: 615076

Фенотипы (32)

Очень частый (80–99%)1
HP:0000590Progressive external ophthalmoplegia
Частый (30–79%)21
HP:0000508Ptosis
HP:0001265Hyporeflexia
HP:0001611Hypernasal speech
HP:0001618Dysphonia
HP:0001644Dilated cardiomyopathy
HP:0002015Dysphagia
HP:0002018Nausea
HP:0002094Dyspnea
HP:0002719Recurrent infections
HP:0002808Kyphosis
HP:0002878Respiratory failure
HP:0003198Myopathy
HP:0003200Ragged-red muscle fibers
HP:0003236Elevated circulating creatine kinase concentration
HP:0003306Spinal rigidity
HP:0003388Easy fatigability
HP:0003546Exercise intolerance
HP:0003700Generalized amyotrophy
HP:0008443Spinal deformities
HP:0030319Weakness of facial musculature
HP:0040013Decreased mitochondrial number
Периодический (5–29%)3
HP:0000787Nephrolithiasis
HP:0002747Respiratory insufficiency due to muscle weakness
HP:0004396Poor appetite
Очень редкий (1–4%)6
HP:0000252Microcephaly
HP:0000815Hypergonadotropic hypogonadism
HP:0001249Intellectual disability
HP:0001272Cerebellar atrophy
HP:0002014Diarrhea
HP:0011675Arrhythmia
Исключён (0%)1
HP:0000651Diplopia

Эпидемиология (2)

Cases/families
Worldwide
Point prevalence
<1 / 1 000 000
Worldwide

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы