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ISPD-related limb-girdle muscular dystrophy R20

ORPHA:352479DiseaseAutosomal recessiveChildhood, Infancy

Ассоциированные гены (1)

CRPPA
CDP-L-ribitol pyrophosphorylase A
Disease-causing germline mutation(s) (loss of function) in
OMIM: 614631

Фенотипы (16)

Очень частый (80–99%)2
HP:0003325Limb-girdle muscle weakness
HP:0030046Hypoglycosylation of alpha-dystroglycan
Частый (30–79%)8
HP:0000158Macroglossia
HP:0001626Abnormality of the cardiovascular system
HP:0002792Reduced vital capacity
HP:0003202Skeletal muscle atrophy
HP:0003707Calf muscle pseudohypertrophy
HP:0008994Proximal muscle weakness in lower limbs
HP:0008997Proximal muscle weakness in upper limbs
HP:0030234Highly elevated creatine kinase
Периодический (5–29%)4
HP:0002505Loss of ambulation
HP:0003326Myalgia
HP:0003691Scapular winging
HP:0008305Exercise-induced myoglobinuria
Очень редкий (1–4%)2
HP:0000478Abnormality of the eye
HP:0011446Abnormality of higher mental function

Эпидемиология (2)

Cases/families
Worldwide
Point prevalence
<1 / 1 000 000
Worldwide

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы