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Macrocephaly-intellectual disability-neurodevelopmental disorder-small thorax syndrome

ORPHA:457485Malformation syndromeAutosomal dominantInfancy, Neonatal

Ассоциированные гены (1)

MTOR
mechanistic target of rapamycin kinase
Disease-causing germline mutation(s) (gain of function) in
OMIM: 601231

Фенотипы (45)

Очень частый (80–99%)3
HP:0000256Macrocephaly
HP:0001249Intellectual disability
HP:0001355Megalencephaly
Частый (30–79%)11
HP:0001250Seizure
HP:0001263Global developmental delay
HP:0001328Specific learning disability
HP:0001520Large for gestational age
HP:0001999Abnormal facial shape
HP:0002007Frontal bossing
HP:0002119Ventriculomegaly
HP:0002167Abnormality of speech or vocalization
HP:0002197Generalized-onset seizure
HP:0002212Curly hair
HP:0007359Focal-onset seizure
Периодический (5–29%)23
HP:0000028Cryptorchidism
HP:0000154Wide mouth
HP:0000194Open mouth
HP:0000316Hypertelorism
HP:0000343Long philtrum
HP:0000486Strabismus
HP:0000729Autistic behavior
HP:0000752Hyperactivity
HP:0000957Cafe-au-lait spot
HP:0001028Hemangioma
HP:0001053Hypopigmented skin patches
HP:0001252Hypotonia
HP:0001273Abnormal corpus callosum morphology
HP:0001288Gait disturbance
HP:0001538Protuberant abdomen
HP:0001540Diastasis recti
HP:0001763Pes planus
HP:0002099Asthma
HP:0002126Polymicrogyria
HP:0004789Lactose intolerance
HP:0005257Thoracic hypoplasia
HP:0011220Prominent forehead
HP:0025104Capillary malformation
Очень редкий (1–4%)8
HP:0000047Hypospadias
HP:0000331Short chin
HP:0000494Downslanted palpebral fissures
HP:0001998Neonatal hypoglycemia
HP:0002720Decreased circulating IgA level
HP:0005266Intestinal polyp
HP:0005280Depressed nasal bridge
HP:0012393Allergy

Эпидемиология (2)

Cases/families
Worldwide
Point prevalence
<1 / 1 000 000
Worldwide

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы