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Early-onset progressive encephalopathy-spastic ataxia-distal spinal muscular atrophy syndrome

ORPHA:496756DiseaseAutosomal recessiveInfancy, Neonatal

Ассоциированные гены (1)

TBCE
tubulin folding cofactor E
Disease-causing germline mutation(s) in
OMIM: 604934

Фенотипы (24)

Очень частый (80–99%)4
HP:0002448Progressive encephalopathy
HP:0002497Spastic ataxia
HP:0003693Distal amyotrophy
HP:0007269Spinal muscular atrophy
Частый (30–79%)11
HP:0001249Intellectual disability
HP:0001260Dysarthria
HP:0001263Global developmental delay
HP:0001272Cerebellar atrophy
HP:0001290Generalized hypotonia
HP:0002079Hypoplasia of the corpus callosum
HP:0002376Developmental regression
HP:0003444EMG: chronic denervation signs
HP:0003477Peripheral axonal neuropathy
HP:0003698Difficulty standing
HP:0009027Foot dorsiflexor weakness
Периодический (5–29%)6
HP:0000648Optic atrophy
HP:0001285Spastic tetraparesis
HP:0002425Anarthria
HP:0002650Scoliosis
HP:0007199Progressive spastic paraparesis
HP:0012678Iron accumulation in substantia nigra
Очень редкий (1–4%)1
HP:0001250Seizure
Исключён (0%)2
HP:0000829Hypoparathyroidism
HP:0001510Growth delay

Эпидемиология (2)

Cases/families
Worldwide
Point prevalence
<1 / 1 000 000
Worldwide

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы