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Noonan syndrome with multiple lentigines

ORPHA:500Malformation syndromeAutosomal dominantNeonatal

Ассоциированные гены (3)

PTPN11
protein tyrosine phosphatase non-receptor type 11
Disease-causing germline mutation(s) in
OMIM: 176876
BRAF
B-Raf proto-oncogene, serine/threonine kinase
Disease-causing germline mutation(s) in
OMIM: 164757
RAF1
Raf-1 proto-oncogene, serine/threonine kinase
Disease-causing germline mutation(s) (gain of function) in
OMIM: 164760

Фенотипы (50)

Очень частый (80–99%)16
HP:0000078Abnormality of the genital system
HP:0000316Hypertelorism
HP:0000407Sensorineural hearing impairment
HP:0000974Hyperextensible skin
HP:0000995Melanocytic nevus
HP:0001003Multiple lentigines
HP:0001480Freckling
HP:0001510Growth delay
HP:0001511Intrauterine growth retardation
HP:0001639Hypertrophic cardiomyopathy
HP:0001641Abnormal pulmonary valve morphology
HP:0001642Pulmonic stenosis
HP:0004414Abnormality of the pulmonary artery
HP:0008625Severe sensorineural hearing impairment
HP:0011675Arrhythmia
HP:0011710Bundle branch block
Частый (30–79%)16
HP:0000028Cryptorchidism
HP:0000144Decreased fertility
HP:0000271Abnormality of the face
HP:0000431Wide nasal bridge
HP:0000465Webbed neck
HP:0000508Ptosis
HP:0000767Pectus excavatum
HP:0000768Pectus carinatum
HP:0000912Sprengel anomaly
HP:0001633Abnormal mitral valve morphology
HP:0001634Mitral valve prolapse
HP:0003691Scapular winging
HP:0004322Short stature
HP:0006695Atrioventricular canal defect
HP:0030680Abnormal cardiovascular system morphology
HP:0000358Posteriorly rotated ears
Периодический (5–29%)18
HP:0000047Hypospadias
HP:0000248Brachycephaly
HP:0000325Triangular face
HP:0001256Intellectual disability, mild
HP:0001263Global developmental delay
HP:0001482Subcutaneous nodule
HP:0001608Abnormality of the voice
HP:0001658Myocardial infarction
HP:0002617Dilatation
HP:0002650Scoliosis
HP:0002861Melanoma
HP:0002863Myelodysplasia
HP:0003006Neuroblastoma
HP:0003298Spina bifida occulta
HP:0004306Abnormality of the endocardium
HP:0007392Excessive wrinkled skin
HP:0010318Aplasia/Hypoplasia of the abdominal wall musculature
HP:0100542Abnormal localization of kidney

Эпидемиология (2)

Cases/families
Worldwide
Point prevalence
<1 / 1 000 000
Worldwide

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы