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Acute intermittent porphyria

ORPHA:79276DiseaseAutosomal dominantAdolescent, Adult

Ассоциированные гены (1)

HMBS
hydroxymethylbilane synthase
Disease-causing germline mutation(s) in
OMIM: 609806

Фенотипы (51)

Очень частый (80–99%)5
HP:0002027Abdominal pain
HP:0003163Elevated urinary delta-aminolevulinic acid
HP:0010473Porphyrinuria
HP:0012217Increased urinary porphobilinogen
HP:0012379Abnormal enzyme/coenzyme activity
Частый (30–79%)11
HP:0000083Renal insufficiency
HP:0000822Hypertension
HP:0001268Mental deterioration
HP:0001649Tachycardia
HP:0002017Nausea and vomiting
HP:0002019Constipation
HP:0003418Back pain
HP:0006824Cranial nerve paralysis
HP:0009763Limb pain
HP:0009830Peripheral neuropathy
HP:0030833Neck pain
Периодический (5–29%)28
HP:0000711Restlessness
HP:0000716Depression
HP:0000738Hallucinations
HP:0000739Anxiety
HP:0001250Seizure
HP:0001262Excessive daytime somnolence
HP:0001289Confusion
HP:0001402Hepatocellular carcinoma
HP:0001945Fever
HP:0002014Diarrhea
HP:0002093Respiratory insufficiency
HP:0002203Respiratory paralysis
HP:0002354Memory impairment
HP:0002460Distal muscle weakness
HP:0002595Ileus
HP:0002902Hyponatremia
HP:0003270Abdominal distention
HP:0003474Somatic sensory dysfunction
HP:0004347Weakness of muscles of respiration
HP:0007002Motor axonal neuropathy
HP:0007024Pseudobulbar paralysis
HP:0007178Motor polyneuropathy
HP:0008994Proximal muscle weakness in lower limbs
HP:0008997Proximal muscle weakness in upper limbs
HP:0011999Paranoia
HP:0040319Dark urine
HP:0100785Insomnia
HP:0410263Brain imaging abnormality
Очень редкий (1–4%)6
HP:0000016Urinary retention
HP:0000020Urinary incontinence
HP:0000975Hyperhidrosis
HP:0001259Coma
HP:0001337Tremor
HP:0100518Dysuria
Исключён (0%)1
HP:0011121Abnormal skin morphology

Эпидемиология (22)

Annual incidence
<1 / 1 000 000
Europe
Point prevalence
1-9 / 1 000 000
Europe
Annual incidence
<1 / 1 000 000
France
Point prevalence
1-9 / 1 000 000
France
Annual incidence
<1 / 1 000 000
Italy
Point prevalence
1-9 / 1 000 000
Italy
Annual incidence
<1 / 1 000 000
Finland
Point prevalence
1-9 / 1 000 000
Finland
Annual incidence
<1 / 1 000 000
Netherlands
Point prevalence
1-9 / 1 000 000
Netherlands
Annual incidence
<1 / 1 000 000
Norway
Point prevalence
1-9 / 1 000 000
Norway
Annual incidence
<1 / 1 000 000
Poland
Point prevalence
1-9 / 1 000 000
Poland
Annual incidence
<1 / 1 000 000
Spain
Point prevalence
1-9 / 1 000 000
Spain
Annual incidence
<1 / 1 000 000
Sweden
Point prevalence
1-5 / 10 000
Sweden
Annual incidence
<1 / 1 000 000
Switzerland
Point prevalence
1-9 / 1 000 000
Switzerland
Annual incidence
<1 / 1 000 000
United Kingdom
Point prevalence
1-9 / 1 000 000
United Kingdom

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы