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Trichohepatoenteric syndrome

ORPHA:84064DiseaseAutosomal recessiveAntenatal, Infancy, Neonatal

Ассоциированные гены (2)

SKIC3
SKI3 subunit of superkiller complex
Disease-causing germline mutation(s) in
OMIM: 614589
SKIC2
SKI2 subunit of superkiller complex
Disease-causing germline mutation(s) in
OMIM: 600478

Фенотипы (52)

Очень частый (80–99%)4
HP:0001999Abnormal facial shape
HP:0002041Intractable diarrhea
HP:0002224Woolly hair
HP:0002721Immunodeficiency
Частый (30–79%)21
HP:0000316Hypertelorism
HP:0000337Broad forehead
HP:0000431Wide nasal bridge
HP:0001256Intellectual disability, mild
HP:0001263Global developmental delay
HP:0001392Abnormality of the liver
HP:0001394Cirrhosis
HP:0001395Hepatic fibrosis
HP:0001511Intrauterine growth retardation
HP:0001518Small for gestational age
HP:0002240Hepatomegaly
HP:0002299Brittle hair
HP:0003139Panhypogammaglobulinemia
HP:0004322Short stature
HP:0005599Hypopigmentation of hair
HP:0009886Trichorrhexis nodosa
HP:0011121Abnormal skin morphology
HP:0011220Prominent forehead
HP:0011473Villous atrophy
HP:0025156Dependency on intravenous nutrition
HP:0030056Uncombable hair
Периодический (5–29%)10
HP:0000957Cafe-au-lait spot
HP:0000958Dry skin
HP:0001627Abnormal heart morphology
HP:0001888Lymphopenia
HP:0001894Thrombocytosis
HP:0002583Colitis
HP:0002719Recurrent infections
HP:0005263Gastritis
HP:0011031Abnormality of iron homeostasis
HP:0011877Increased mean platelet volume
Очень редкий (1–4%)17
HP:0000023Inguinal hernia
HP:0000089Renal hypoplasia
HP:0000113Polycystic kidney dysplasia
HP:0000501Glaucoma
HP:0000778Hypoplasia of the thymus
HP:0000821Hypothyroidism
HP:0001629Ventricular septal defect
HP:0001631Atrial septal defect
HP:0001636Tetralogy of Fallot
HP:0001643Patent ductus arteriosus
HP:0001647Bicuspid aortic valve
HP:0001659Aortic regurgitation
HP:0001744Splenomegaly
HP:0002884Hepatoblastoma
HP:0004969Peripheral pulmonary artery stenosis
HP:0007513Generalized hypopigmentation
HP:0025085Bloody diarrhea

Эпидемиология (3)

Cases/families
Worldwide
Point prevalence
<1 / 1 000 000
Worldwide
Prevalence at birth
1-9 / 1 000 000
France

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы