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Autosomal dominant Emery-Dreifuss muscular dystrophy

ORPHA:98853Etiological subtypeAutosomal dominantChildhood

Ассоциированные гены (4)

LMNA
lamin A/C
Disease-causing germline mutation(s) in
OMIM: 150330
SYNE1
spectrin repeat containing nuclear envelope protein 1
Disease-causing germline mutation(s) in
OMIM: 608441
TMEM43
transmembrane protein 43
Disease-causing germline mutation(s) in
OMIM: 612048
SYNE2
spectrin repeat containing nuclear envelope protein 2
Disease-causing germline mutation(s) in
OMIM: 608442

Фенотипы (44)

Очень частый (80–99%)7
HP:0000767Pectus excavatum
HP:0001315Reduced tendon reflexes
HP:0001387Joint stiffness
HP:0002486Myotonia
HP:0003198Myopathy
HP:0003236Elevated circulating creatine kinase concentration
HP:0006785Limb-girdle muscular dystrophy
Частый (30–79%)20
HP:0000912Sprengel anomaly
HP:0001288Gait disturbance
HP:0001771Achilles tendon contracture
HP:0002155Hypertriglyceridemia
HP:0002515Waddling gait
HP:0002987Elbow flexion contracture
HP:0003141Increased LDL cholesterol concentration
HP:0003306Spinal rigidity
HP:0003418Back pain
HP:0003458EMG: myopathic abnormalities
HP:0003691Scapular winging
HP:0003805Rimmed vacuoles
HP:0004631Decreased cervical spine flexion due to contractures of posterior cervical muscles
HP:0008948Proximal upper limb amyotrophy
HP:0008956Proximal lower limb amyotrophy
HP:0008994Proximal muscle weakness in lower limbs
HP:0008997Proximal muscle weakness in upper limbs
HP:0011807Type 1 muscle fiber atrophy
HP:0030051Tip-toe gait
HP:0030117Absent muscle fiber emerin
Периодический (5–29%)11
HP:0000508Ptosis
HP:0001252Hypotonia
HP:0001513Obesity
HP:0001644Dilated cardiomyopathy
HP:0001678Atrioventricular block
HP:0002650Scoliosis
HP:0002808Kyphosis
HP:0003307Hyperlordosis
HP:0005115Supraventricular arrhythmia
HP:0008064Ichthyosis
HP:0009125Lipodystrophy
Очень редкий (1–4%)5
HP:0001605Vocal cord paralysis
HP:0001639Hypertrophic cardiomyopathy
HP:0001645Sudden cardiac death
HP:0002747Respiratory insufficiency due to muscle weakness
HP:0005155Ventricular escape rhythm
Исключён (0%)1
HP:0001249Intellectual disability

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы