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Autosomal recessive centronuclear myopathy

ORPHA:169186DiseaseAutosomal recessiveChildhood, Infancy, Neonatal

Ассоциированные гены (4)

TTN
titin
Disease-causing germline mutation(s) in
OMIM: 188840
SPEG
striated muscle enriched protein kinase
Disease-causing germline mutation(s) in
OMIM: 615950
RYR1
ryanodine receptor 1
Disease-causing germline mutation(s) in
OMIM: 180901
BIN1
bridging integrator 1
Disease-causing germline mutation(s) (loss of function) in
OMIM: 601248

Фенотипы (36)

Частый (30–79%)12
HP:0000218High palate
HP:0000278Retrognathia
HP:0001270Motor delay
HP:0001290Generalized hypotonia
HP:0002093Respiratory insufficiency
HP:0002515Waddling gait
HP:0003323Progressive muscle weakness
HP:0003391Gowers sign
HP:0003551Difficulty climbing stairs
HP:0003700Generalized amyotrophy
HP:0009046Difficulty running
HP:0010628Facial palsy
Периодический (5–29%)24
HP:0000160Narrow mouth
HP:0000193Bifid uvula
HP:0000276Long face
HP:0000411Protruding ear
HP:0000597Ophthalmoparesis
HP:0000602Ophthalmoplegia
HP:0000750Delayed speech and language development
HP:0001256Intellectual disability, mild
HP:0001260Dysarthria
HP:0001284Areflexia
HP:0001349Facial diplegia
HP:0001618Dysphonia
HP:0001654Abnormal heart valve morphology
HP:0001712Left ventricular hypertrophy
HP:0001761Pes cavus
HP:0001762Talipes equinovarus
HP:0001999Abnormal facial shape
HP:0003273Hip contracture
HP:0003307Hyperlordosis
HP:0003403EMG: decremental response of compound muscle action potential to repetitive nerve stimulation
HP:0003687Centrally nucleated skeletal muscle fibers
HP:0003691Scapular winging
HP:0003803Type 1 muscle fiber predominance
HP:0100807Long fingers

Эпидемиология (1)

Point prevalence
Unknown
Worldwide

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы