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Bernard-Soulier syndrome

ORPHA:274DiseaseAutosomal dominant, Autosomal recessiveAll ages

Ассоциированные гены (3)

GP1BA
glycoprotein Ib platelet subunit alpha
Disease-causing germline mutation(s) in
OMIM: 606672
GP1BB
glycoprotein Ib platelet subunit beta
Disease-causing germline mutation(s) in
OMIM: 138720
GP9
glycoprotein IX platelet
Disease-causing germline mutation(s) in
OMIM: 173515

Фенотипы (21)

Облигатный (100%)1
HP:0011871Impaired ristocetin-induced platelet aggregation
Очень частый (80–99%)4
HP:0001892Abnormal bleeding
HP:0001902Giant platelets
HP:0011879Decreased platelet glycoprotein Ib-IX-V
HP:0040185Macrothrombocytopenia
Частый (30–79%)6
HP:0000132Menorrhagia
HP:0000967Petechiae
HP:0002239Gastrointestinal hemorrhage
HP:0004406Spontaneous, recurrent epistaxis
HP:0006298Prolonged bleeding after dental extraction
HP:0007420Spontaneous hematomas
Периодический (5–29%)6
HP:0000225Gingival bleeding
HP:0000978Bruising susceptibility
HP:0002248Hematemesis
HP:0004846Prolonged bleeding after surgery
HP:0012143Abnormal megakaryocyte morphology
HP:0012587Macroscopic hematuria
Очень редкий (1–4%)4
HP:0001250Seizure
HP:0002076Migraine
HP:0002099Asthma
HP:0008738Partially duplicated kidney

Эпидемиология (2)

Cases/families
Worldwide
Point prevalence
<1 / 1 000 000
Worldwide

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы