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Congenital myasthenic syndrome with glycosylation defect

ORPHA:353327Etiological subtypeAutosomal recessiveInfancy, Neonatal

Ассоциированные гены (5)

ALG2
ALG2 alpha-1,3/1,6-mannosyltransferase
Disease-causing germline mutation(s) in
OMIM: 607905
DPAGT1
dolichyl-phosphate N-acetylglucosaminephosphotransferase 1
Disease-causing germline mutation(s) in
OMIM: 191350
GFPT1
glutamine--fructose-6-phosphate transaminase 1
Disease-causing germline mutation(s) in
OMIM: 138292
ALG14
ALG14 UDP-N-acetylglucosaminyltransferase subunit
Disease-causing germline mutation(s) in
OMIM: 612866
GMPPB
GDP-mannose pyrophosphorylase B
Disease-causing germline mutation(s) in
OMIM: 615320

Фенотипы (36)

Частый (30–79%)14
HP:0000218High palate
HP:0001270Motor delay
HP:0001284Areflexia
HP:0001290Generalized hypotonia
HP:0001763Pes planus
HP:0003198Myopathy
HP:0003325Limb-girdle muscle weakness
HP:0003403EMG: decremental response of compound muscle action potential to repetitive nerve stimulation
HP:0003473Fatigable weakness
HP:0003701Proximal muscle weakness
HP:0030191Abnormal peripheral nervous system synaptic transmission
HP:0030202Favorable response of weakness to acetylcholine esterase inhibitors
HP:0030205Increased jitter at single fibre EMG
HP:0100301Muscle fiber tubular inclusions
Периодический (5–29%)21
HP:0000508Ptosis
HP:0001288Gait disturbance
HP:0001371Flexion contracture
HP:0001382Joint hypermobility
HP:0002359Frequent falls
HP:0002421Poor head control
HP:0002515Waddling gait
HP:0002650Scoliosis
HP:0002938Lumbar hyperlordosis
HP:0003200Ragged-red muscle fibers
HP:0003236Elevated circulating creatine kinase concentration
HP:0003388Easy fatigability
HP:0003391Gowers sign
HP:0003394Muscle spasm
HP:0003551Difficulty climbing stairs
HP:0003691Scapular winging
HP:0003803Type 1 muscle fiber predominance
HP:0006380Knee flexion contracture
HP:0009028Generalized weakness of limb muscles
HP:0009046Difficulty running
HP:0010628Facial palsy
Очень редкий (1–4%)1
HP:0002460Distal muscle weakness

Эпидемиология (1)

Point prevalence
Unknown
Worldwide

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы