← Назад

Inclusion body myopathy with Paget disease of bone and frontotemporal dementia

ORPHA:52430DiseaseAutosomal dominantAdult

Ассоциированные гены (3)

VCP
valosin containing protein
Disease-causing germline mutation(s) in
OMIM: 601023
HNRNPA2B1
heterogeneous nuclear ribonucleoprotein A2/B1
Disease-causing germline mutation(s) in
OMIM: 600124
HNRNPA1
heterogeneous nuclear ribonucleoprotein A1
Disease-causing germline mutation(s) in
OMIM: 164017

Фенотипы (43)

Очень частый (80–99%)9
HP:0002460Distal muscle weakness
HP:0002515Waddling gait
HP:0003236Elevated circulating creatine kinase concentration
HP:0003307Hyperlordosis
HP:0003458EMG: myopathic abnormalities
HP:0003557Increased variability in muscle fiber diameter
HP:0003701Proximal muscle weakness
HP:0003805Rimmed vacuoles
HP:0012083Ubiquitin-positive cerebral inclusion bodies
Частый (30–79%)7
HP:0000925Abnormality of the vertebral column
HP:0002145Frontotemporal dementia
HP:0002797Osteolysis
HP:0003155Elevated circulating alkaline phosphatase concentration
HP:0004322Short stature
HP:0012444Brain atrophy
HP:0030838Hip pain
Периодический (5–29%)26
HP:0000518Cataract
HP:0001249Intellectual disability
HP:0001293Cranial nerve compression
HP:0001397Hepatic steatosis
HP:0001635Congestive heart failure
HP:0001638Cardiomyopathy
HP:0002300Mutism
HP:0002380Fasciculations
HP:0002381Aphasia
HP:0002442Dyscalculia
HP:0002450Abnormal motor neuron morphology
HP:0002463Language impairment
HP:0002493Upper motor neuron dysfunction
HP:0002659Increased susceptibility to fractures
HP:0002683Abnormality of the calvaria
HP:0002839Urinary bladder sphincter dysfunction
HP:0003390Sensory axonal neuropathy
HP:0003444EMG: chronic denervation signs
HP:0003445EMG: neuropathic changes
HP:0003700Generalized amyotrophy
HP:0004347Weakness of muscles of respiration
HP:0004490Calvarial hyperostosis
HP:0007002Motor axonal neuropathy
HP:0007354Amyotrophic lateral sclerosis
HP:0011314Abnormality of long bone morphology
HP:0012548Fatty replacement of skeletal muscle
Очень редкий (1–4%)1
HP:0002756Pathologic fracture

Эпидемиология (2)

Cases/families
Worldwide
Point prevalence
<1 / 1 000 000
Worldwide

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы