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Joubert syndrome with oculorenal defect

ORPHA:2318Malformation syndromeAutosomal recessiveInfancy, Neonatal

Ассоциированные гены (7)

CEP290
centrosomal protein 290
Disease-causing germline mutation(s) in
OMIM: 610142
CC2D2A
coiled-coil and C2 domain containing 2A
Disease-causing germline mutation(s) in
OMIM: 612013
TMEM216
transmembrane protein 216
Disease-causing germline mutation(s) in
OMIM: 613277
TMEM237
transmembrane protein 237
Disease-causing germline mutation(s) in
OMIM: 614423
TMEM138
transmembrane protein 138
Disease-causing germline mutation(s) (loss of function) in
OMIM: 614459
ZNF423
zinc finger protein 423
Disease-causing germline mutation(s) in
OMIM: 604557
TMEM231
transmembrane protein 231
Disease-causing germline mutation(s) in
OMIM: 614949

Фенотипы (37)

Очень частый (80–99%)10
HP:0000112Nephropathy
HP:0000556Retinal dystrophy
HP:0001249Intellectual disability
HP:0001251Ataxia
HP:0001252Hypotonia
HP:0001263Global developmental delay
HP:0001320Cerebellar vermis hypoplasia
HP:0002104Apnea
HP:0002419Molar tooth sign on MRI
HP:0002789Tachypnea
Частый (30–79%)11
HP:0000276Long face
HP:0000505Visual impairment
HP:0000508Ptosis
HP:0000567Chorioretinal coloboma
HP:0000612Iris coloboma
HP:0000618Blindness
HP:0000639Nystagmus
HP:0000708Atypical behavior
HP:0000729Autistic behavior
HP:0004422Biparietal narrowing
HP:0000358Posteriorly rotated ears
Периодический (5–29%)16
HP:0000083Renal insufficiency
HP:0000238Hydrocephalus
HP:0000426Prominent nasal bridge
HP:0000463Anteverted nares
HP:0000486Strabismus
HP:0000864Abnormality of the hypothalamus-pituitary axis
HP:0001161Hand polydactyly
HP:0001250Seizure
HP:0001829Foot polydactyly
HP:0002084Encephalocele
HP:0002251Aganglionic megacolon
HP:0002269Abnormality of neuronal migration
HP:0002553Highly arched eyebrow
HP:0002650Scoliosis
HP:0007370Aplasia/Hypoplasia of the corpus callosum
HP:0030680Abnormal cardiovascular system morphology

Эпидемиология (2)

Point prevalence
<1 / 1 000 000
Worldwide
Cases/families
Worldwide

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы