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Alport syndrome-intellectual disability-midface hypoplasia-elliptocytosis syndrome

ORPHA:86818DiseaseX-linked recessiveAntenatal, Infancy, Neonatal

Ассоциированные гены (3)

KCNE5
potassium voltage-gated channel subfamily E regulatory subunit 5
Role in the phenotype of
OMIM: 300328
ACSL4
acyl-CoA synthetase long chain family member 4
Role in the phenotype of
OMIM: 300157
AMMECR1
AMMECR nuclear protein 1
Role in the phenotype of
OMIM: 300195

Фенотипы (22)

Очень частый (80–99%)9
HP:0000093Proteinuria
HP:0000272Malar flattening
HP:0000463Anteverted nares
HP:0000494Downslanted palpebral fissures
HP:0001595Abnormality of the hair
HP:0002907Microscopic hematuria
HP:0005280Depressed nasal bridge
HP:0010864Intellectual disability, severe
HP:0100820Glomerulopathy
Частый (30–79%)7
HP:0000083Renal insufficiency
HP:0000233Thin vermilion border
HP:0000365Hearing impairment
HP:0001182Tapered finger
HP:0001252Hypotonia
HP:0004445Elliptocytosis
HP:0012471Thick vermilion border
Периодический (5–29%)6
HP:0000486Strabismus
HP:0000545Myopia
HP:0000944Abnormal metaphysis morphology
HP:0001643Patent ductus arteriosus
HP:0001646Abnormal aortic valve morphology
HP:0011069Supernumerary tooth

Эпидемиология (2)

Cases/families
Worldwide
Point prevalence
<1 / 1 000 000
Worldwide

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы