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Jeune syndrome

ORPHA:474Malformation syndromeAutosomal recessiveAntenatal, Neonatal

Ассоциированные гены (11)

KIAA0753
KIAA0753
Disease-causing germline mutation(s) in
OMIM: 617112
DYNC2LI1
dynein cytoplasmic 2 light intermediate chain 1
Disease-causing germline mutation(s) in
OMIM: 617083
IFT80
intraflagellar transport 80
Disease-causing germline mutation(s) in
OMIM: 611177
DYNC2H1
dynein cytoplasmic 2 heavy chain 1
Disease-causing germline mutation(s) in
OMIM: 603297
TTC21B
tetratricopeptide repeat domain 21B
Disease-causing germline mutation(s) in
OMIM: 612014
WDR19
WD repeat domain 19
Disease-causing germline mutation(s) in
OMIM: 608151
IFT140
intraflagellar transport 140
Disease-causing germline mutation(s) in
OMIM: 614620
DYNC2I1
dynein 2 intermediate chain 1
Disease-causing germline mutation(s) in
OMIM: 615462
IFT172
intraflagellar transport 172
Disease-causing germline mutation(s) in
OMIM: 607386
DYNC2I2
dynein 2 intermediate chain 2
Disease-causing germline mutation(s) in
OMIM: 613363
CEP120
centrosomal protein 120
Disease-causing germline mutation(s) in
OMIM: 613446

Фенотипы (24)

Очень частый (80–99%)6
HP:0000772Abnormal rib morphology
HP:0000774Narrow chest
HP:0002644Abnormality of pelvic girdle bone morphology
HP:0002652Skeletal dysplasia
HP:0002983Micromelia
HP:0010306Short thorax
Частый (30–79%)7
HP:0000766Abnormal sternum morphology
HP:0000889Abnormality of the clavicle
HP:0000944Abnormal metaphysis morphology
HP:0001156Brachydactyly
HP:0001773Short foot
HP:0002093Respiratory insufficiency
HP:0010579Cone-shaped epiphysis
Периодический (5–29%)11
HP:0000083Renal insufficiency
HP:0000090Nephronophthisis
HP:0000112Nephropathy
HP:0001162Postaxial hand polydactyly
HP:0001392Abnormality of the liver
HP:0001770Toe syndactyly
HP:0001830Postaxial foot polydactyly
HP:0004322Short stature
HP:0006703Aplasia/Hypoplasia of the lungs
HP:0007703Abnormality of retinal pigmentation
HP:0008872Feeding difficulties in infancy

Эпидемиология (3)

Prevalence at birth
1-9 / 100 000
Europe
Prevalence at birth
1-9 / 1 000 000
Australia
Point prevalence
Unknown
Worldwide

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы