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Isolated Joubert syndrome

ORPHA:475Malformation syndromeAutosomal recessiveAntenatal

Ассоциированные гены (30)

CEP120
centrosomal protein 120
Disease-causing germline mutation(s) in
OMIM: 613446
PIBF1
progesterone immunomodulatory binding factor 1
Disease-causing germline mutation(s) in
OMIM: 607532
OFD1
OFD1 centriole and centriolar satellite protein
Disease-causing germline mutation(s) in
OMIM: 300170
TCTN3
tectonic family member 3
Disease-causing germline mutation(s) in
OMIM: 613847
PDE6D
phosphodiesterase 6D
Disease-causing germline mutation(s) in
OMIM: 602676
KIAA0753
KIAA0753
Disease-causing germline mutation(s) in
OMIM: 617112
IFT74
intraflagellar transport 74
Disease-causing germline mutation(s) in
OMIM: 608040
B9D2
B9 domain containing 2
Disease-causing germline mutation(s) in
OMIM: 611951
TCTN2
tectonic family member 2
Disease-causing germline mutation(s) in
OMIM: 613846
AHI1
Abelson helper integration site 1
Disease-causing germline mutation(s) in
OMIM: 608894
TMEM67
transmembrane protein 67
Disease-causing germline mutation(s) in
OMIM: 609884
MKS1
MKS transition zone complex subunit 1
Disease-causing germline mutation(s) in
OMIM: 609883
ARL13B
ARF like GTPase 13B
Disease-causing germline mutation(s) in
OMIM: 608922
INPP5E
inositol polyphosphate-5-phosphatase E
Disease-causing germline mutation(s) in
OMIM: 613037
TCTN1
tectonic family member 1
Disease-causing germline mutation(s) in
OMIM: 609863
B9D1
B9 domain containing 1
Disease-causing germline mutation(s) in
OMIM: 614144
TMEM237
transmembrane protein 237
Disease-causing germline mutation(s) in
OMIM: 614423
CEP41
centrosomal protein 41
Disease-causing germline mutation(s) (loss of function) in
OMIM: 610523
CPLANE1
ciliogenesis and planar polarity effector complex subunit 1
Disease-causing germline mutation(s) in
OMIM: 614571
CSPP1
centrosome and spindle pole associated protein 1
Disease-causing germline mutation(s) (loss of function) in
OMIM: 611654
KIAA0586
KIAA0586
Disease-causing germline mutation(s) in
OMIM: 610178
CEP104
centrosomal protein 104
Disease-causing germline mutation(s) in
OMIM: 616690
KATNIP
katanin interacting protein
Disease-causing germline mutation(s) (loss of function) in
OMIM: 616650
SUFU
SUFU negative regulator of hedgehog signaling
Disease-causing germline mutation(s) in
OMIM: 607035
ARMC9
armadillo repeat containing 9
Disease-causing germline mutation(s) in
OMIM: 617612
CBY1
chibby 1, beta catenin antagonist
Disease-causing germline mutation(s) (loss of function) in
OMIM: 607757
HYLS1
HYLS1 centriolar and ciliogenesis associated
Disease-causing germline mutation(s) in
OMIM: 610693
TOGARAM1
TOG array regulator of axonemal microtubules 1
Disease-causing germline mutation(s) in
OMIM: 617618
TMEM218
transmembrane protein 218
Disease-causing germline mutation(s) (loss of function) in
OMIM: 619285
ARL3
ARF like GTPase 3
Disease-causing germline mutation(s) in
OMIM: 604695

Фенотипы (37)

Очень частый (80–99%)9
HP:0000657Oculomotor apraxia
HP:0001249Intellectual disability
HP:0001251Ataxia
HP:0001252Hypotonia
HP:0001263Global developmental delay
HP:0001320Cerebellar vermis hypoplasia
HP:0002104Apnea
HP:0002793Abnormal pattern of respiration
HP:0002876Episodic tachypnea
Частый (30–79%)5
HP:0000276Long face
HP:0000639Nystagmus
HP:0001288Gait disturbance
HP:0004422Biparietal narrowing
HP:0008872Feeding difficulties in infancy
Периодический (5–29%)23
HP:0000202Orofacial cleft
HP:0000238Hydrocephalus
HP:0000369Low-set ears
HP:0000426Prominent nasal bridge
HP:0000463Anteverted nares
HP:0000486Strabismus
HP:0000508Ptosis
HP:0000612Iris coloboma
HP:0000864Abnormality of the hypothalamus-pituitary axis
HP:0001161Hand polydactyly
HP:0001250Seizure
HP:0001337Tremor
HP:0001696Situs inversus totalis
HP:0001829Foot polydactyly
HP:0002084Encephalocele
HP:0002126Polymicrogyria
HP:0002251Aganglionic megacolon
HP:0002269Abnormality of neuronal migration
HP:0002553Highly arched eyebrow
HP:0002650Scoliosis
HP:0003312Abnormal form of the vertebral bodies
HP:0007370Aplasia/Hypoplasia of the corpus callosum
HP:0030680Abnormal cardiovascular system morphology

Эпидемиология (4)

Point prevalence
1-9 / 1 000 000
Italy
Prevalence at birth
1-9 / 100 000
Worldwide
Point prevalence
Unknown
Worldwide
Prevalence at birth
1-9 / 100 000
Spain

Лекарства и терапия

Источник: Open Targets Platform (в реальном времени)

Клинические исследования

Источник: ClinicalTrials.gov (в реальном времени)

Внешние ресурсы